Nearly 20% of Ontarians on maintenance dialysis are recent immigrants. Our population-level study found that recent immigrants are less likely than long-standing residents to receive physician-delivered palliative care in the last year of life. This may be due to language discordance between patients and their kidney care providers, as most recent immigrants come from regions where English is not the primary language. Receiving care in a non-primary language is associated with poorer health outcomes. However, it is unknown whether this affects use of palliative care at end of life in people on maintenance dialysis. Using population-level healthcare administrative databases, we will examine whether having a non-English primary language is associated with lower rates of physician-delivered palliative care in this population. Our findings could motivate efforts to provide language-concordant care and serve as the foundation for research aimed at improving palliative care access for marginalized linguistic communities.
Recruitment to platform at one of the hubs
Consent and enrolment in platform
Collection of key data, minimizing participant burden for individual trials
Screening automatically for all trials taking place on the platform, maximizing options for patients and caregivers
Trials – patients and caregivers participate in trials they are eligible for
Ongoing check-ins – patients and caregivers are followed until they choose to stop participating or until patient death
Bereavement – we follow caregivers for up to three years and offer them bereavement interventions
By linking practice and research, the platform will improve care for patients and families affected by advanced cancer.
Practice
Clinicians, patients, and caregivers identify areas for improvement in care.
PCPCRC
Supports foundational research that identifies promising interventions.
Research Platform
Comprised of Phase 3 RCTs, Research Hubs, Data Strategy.
Evaluation of hub model and data strategy to optimize research.
Training and mentorship underlie and uphold all activities in the cycle.