Let’s work together to shape the future of palliative care.
Visit our patient page to learn more about palliative care research, access a list of resources, or search through studies that you or your loved one may be eligible to participate in.
Explore research studies, discuss ideas and projects with colleagues from across the country, and connect with potential collaborators.
Visit our patient page to learn more about palliative care research, access a list of resources, or search through studies that you or your loved one may be eligible to participate in.
Explore research studies, discuss ideas and projects with colleagues from across the country, and connect with potential collaborators.
Evaluate emerging and innovative strategies for improving pain and symptom management, including psychosocial care.
Evaluate models of palliative care delivery across disease trajectories to identify best practices that lead to improvements in patient satisfaction, quality of life, and cost-effectiveness.
Build palliative care research capacity and infrastructure through improved data standardization and sharing.
Create a research platform to allow researchers to find collaborators for multi-site studies or for helpful feedback to improve protocols and grant proposals.
Providing growth and development opportunities to the next generation of investigators in palliative care.
Recruitment to platform at one of the hubs
Consent and enrolment in platform
Collection of key data, minimizing participant burden for individual trials
Screening automatically for all trials taking place on the platform, maximizing options for patients and caregivers
Trials – patients and caregivers participate in trials they are eligible for
Ongoing check-ins – patients and caregivers are followed until they choose to stop participating or until patient death
Bereavement – we follow caregivers for up to three years and offer them bereavement interventions
By linking practice and research, the platform will improve care for patients and families affected by advanced cancer.
Practice
Clinicians, patients, and caregivers identify areas for improvement in care.
PCPCRC
Supports foundational research that identifies promising interventions.
Research Platform
Comprised of Phase 3 RCTs, Research Hubs, Data Strategy.
Evaluation of hub model and data strategy to optimize research.
Training and mentorship underlie and uphold all activities in the cycle.