Building capacity to deliver a palliative approach to care is vital to health system transformation. The demand for palliative care (PC) is increasing, and early integration of PC is needed. Patients want care at home by health care providers (HCP) that will work collaboratively to meet their needs.
Delivering high-quality PC requires competencies that many HCP lack, particularly when working alone to provide home visits in the community setting.
This study develops a PC simulation learning exercise for community-based HCP in a rural, under-resourced region. HCP will gain confidence in symptom management, addressing goals of care, and collaborating within a resource-limited context. Interprofessional simulations will mirror real-world challenges, fostering transformative learning, teamwork, and problem-solving. This initiative seeks to build a lasting scaffold for interprofessional learning, collaboration, and improved care for patients and families across the palliative trajectory.
Recruitment to platform at one of the hubs
Consent and enrolment in platform
Collection of key data, minimizing participant burden for individual trials
Screening automatically for all trials taking place on the platform, maximizing options for patients and caregivers
Trials – patients and caregivers participate in trials they are eligible for
Ongoing check-ins – patients and caregivers are followed until they choose to stop participating or until patient death
Bereavement – we follow caregivers for up to three years and offer them bereavement interventions
By linking practice and research, the platform will improve care for patients and families affected by advanced cancer.
Practice
Clinicians, patients, and caregivers identify areas for improvement in care.
PCPCRC
Supports foundational research that identifies promising interventions.
Research Platform
Comprised of Phase 3 RCTs, Research Hubs, Data Strategy.
Evaluation of hub model and data strategy to optimize research.
Training and mentorship underlie and uphold all activities in the cycle.