People living with advanced (incurable) cancer are not routinely provided timely palliative care. Often, people do not know they can receive palliative care at the same time as cancer treatments as an added layer of support. Cancer doctors must often prioritize helping patients with their cancer treatments over palliative care. To overcome these barriers, this study asks “Can we develop a process so that everyone recently diagnosed with advanced cancer is automatically phoned by a palliative care provider and offered a consultation? And would patients find this phone call acceptable?” We will work with patients and providers to design the process and language for these automatic referrals. We will then test the acceptability of automatic referral with people recently diagnosed with advanced (stage IV) lung cancer. If acceptable, automatic referrals will overcome existing barriers to palliative care referral and guarantee EVERY patient is offered early access to palliative care.
Cancer Only Study
Recruitment to platform at one of the hubs
Consent and enrolment in platform
Collection of key data, minimizing participant burden for individual trials
Screening automatically for all trials taking place on the platform, maximizing options for patients and caregivers
Trials – patients and caregivers participate in trials they are eligible for
Ongoing check-ins – patients and caregivers are followed until they choose to stop participating or until patient death
Bereavement – we follow caregivers for up to three years and offer them bereavement interventions
By linking practice and research, the platform will improve care for patients and families affected by advanced cancer.
Practice
Clinicians, patients, and caregivers identify areas for improvement in care.
PCPCRC
Supports foundational research that identifies promising interventions.
Research Platform
Comprised of Phase 3 RCTs, Research Hubs, Data Strategy.
Evaluation of hub model and data strategy to optimize research.
Training and mentorship underlie and uphold all activities in the cycle.