Improving end-of-life care at home by hearing the voices of bereaved caregivers with community participatory research

Principal Investigator
Karin Fink
McGill University, Department of Family Medicine
Study Contact
carepc.ca@gmail.com
Project Lay Summary

Caregiving for someone at home at the end of life can be difficult. Sometimes, caregivers are so burnt out that they cannot continue their role. Palliative home care teams help caregivers in caring for people at home who are close to the end of life by giving physical support, lending equipment, and relieving pain or other symptoms. Unfortunately, not all palliative home care teams offer the same services. This means that some caregivers do not get all the support they need. Our research goal is to understand how to better support caregivers when they must care for somebody at the end of life at home. We decided to include caregivers in the entire research process. By finding out what support works for caregivers and how to achieve more of it, caregivers will help design the healthcare services most useful to them.

Project Details
Non-Drug Study
Locations
Quebec
Research Topics
Health Services
Symptoms/Conditions/Other
Timely Identification of Palliative Needs, Community Home Care
Target Groups
Family Caregivers

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