Caregiver Decision Road Map

This road map was created by Dr. Seema King’s project team, funded in part by the PCPCRC’s Seed Funding Program, supported by Health Canada, Health Care Policy and Strategies Program. The views expressed herein do not necessarily represent the views of Health Canada.

An illustrated road winds through seven blocks, each highlighting one of the most common decisions caregivers in Alberta encounter.

Patients and Caregivers

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Patient & Caregiver Journey

Patient and Caregiver

Recruitment to platform at one of the hubs

Consent and enrolment in platform

Collection of key data, minimizing participant burden for individual trials

Screening automatically for all trials taking place on the platform, maximizing options for patients and caregivers

Trials – patients and caregivers participate in trials they are eligible for

Ongoing check-ins – patients and caregivers are followed until they choose to stop participating or until patient death

Caregiver

Bereavement – we follow caregivers for up to three years and offer them bereavement interventions

How the Program Works

By linking practice and research, the platform will improve care for patients and families affected by advanced cancer.

Practice
Clinicians, patients, and caregivers identify areas for improvement in care.

PCPCRC
Supports foundational research that identifies promising interventions.

When interventions are ready to be tested, we conduct Phase 3 RCTs on the platform.

Research Platform
Comprised of Phase 3 RCTs, Research Hubs, Data Strategy.
Evaluation of hub model and data strategy to optimize research.

Direct implementation to practice by scaling interventions to all hubs
PCPCRC is the pipeline to dissemination to KUs

Training and mentorship underlie and uphold all activities in the cycle.

Caregiver Decision Road Map

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Patients and Caregivers

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Patient & Caregiver Journey

Patient and Caregiver

Caregiver

How the Program Works