{"id":3201,"date":"2023-10-06T13:16:23","date_gmt":"2023-10-06T17:16:23","guid":{"rendered":"https:\/\/pcpcrc.ca\/?p=3201"},"modified":"2023-10-06T13:21:27","modified_gmt":"2023-10-06T17:21:27","slug":"member-profile-gwenn-boryski","status":"publish","type":"post","link":"https:\/\/pcpcrc.ca\/fr\/member-profile-gwenn-boryski\/","title":{"rendered":"Gwenn Boryski, proche aidante partenaire, sur la valeur de la pr\u00e9paration et de la planification"},"content":{"rendered":"<div data-elementor-type=\"wp-post\" data-elementor-id=\"3201\" class=\"elementor elementor-3201\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-6b1b444 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"6b1b444\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-eef334f\" data-id=\"eef334f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-aedd3c5 elementor-widget elementor-widget-image\" data-id=\"aedd3c5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"800\" height=\"350\" src=\"https:\/\/pcpcrc-media.s3.ca-central-1.amazonaws.com\/wp-content\/uploads\/2025\/12\/03120532\/member-profile-header-website-6.png\" class=\"attachment-full size-full wp-image-3203\" alt=\"\" srcset=\"https:\/\/pcpcrc-media.s3.ca-central-1.amazonaws.com\/wp-content\/uploads\/2025\/12\/03120532\/member-profile-header-website-6.png 800w, https:\/\/pcpcrc-media.s3.ca-central-1.amazonaws.com\/wp-content\/uploads\/2025\/12\/03120532\/member-profile-header-website-6-300x131.png 300w, https:\/\/pcpcrc-media.s3.ca-central-1.amazonaws.com\/wp-content\/uploads\/2025\/12\/03120532\/member-profile-header-website-6-768x336.png 768w, https:\/\/pcpcrc-media.s3.ca-central-1.amazonaws.com\/wp-content\/uploads\/2025\/12\/03120532\/member-profile-header-website-6-18x8.png 18w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-cd7d6b7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"cd7d6b7\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-95a514f\" data-id=\"95a514f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-9bba944 elementor-widget elementor-widget-text-editor\" data-id=\"9bba944\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"_04xlpA direction-ltr align-justify para-style-subtitle\"><em><span class=\"WdYUQQ text-decoration-none text-strikethrough-none\">Le collectif de recherche pancanadien en soins palliatifs (CRPCSP) est \u00e0 la recherche de nouveaux patients et proches aidants partenaires pour aider \u00e0 b\u00e2tir les services de soins palliatifs de demain.<\/span><\/em><\/p><p class=\"_04xlpA direction-ltr align-justify para-style-subtitle\"><em><span class=\"WdYUQQ text-decoration-none text-strikethrough-none\">Le r\u00f4le principal des patients et proches aidants partenaires est de veiller \u00e0 ce que le CRPCSP et les recherches qu\u2019il soutient soient centr\u00e9s sur cette population. Ils mettent leur exp\u00e9rience personnelle \u00e0 profit pour aider les chercheurs \u00e0 \u00e9tablir des priorit\u00e9s et \u00e0 \u00e9tudier des r\u00e9sultats pertinents, \u00e0 comprendre le point de vue des patients et des proches aidants et \u00e0 trouver des moyens efficaces de leur communiquer de l\u2019information sur leurs \u00e9tudes.<\/span><\/em><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-c6f6995 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"c6f6995\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-ebd6cf6\" data-id=\"ebd6cf6\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6923abc elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"6923abc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-3747987 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"3747987\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-4311e0b\" data-id=\"4311e0b\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2d12807 elementor-widget elementor-widget-text-editor\" data-id=\"2d12807\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Bien qu'elle soit l'une des plus r\u00e9centes recrues de la communaut\u00e9 du CRPCSP, Gwenn Boryski, proche aidante partnaire, conna\u00eet bien la d\u00e9fense des int\u00e9r\u00eats dans le domaine des soins de sant\u00e9. Gwenn a soutenu sa m\u00e8re, chez qui on avait diagnostiqu\u00e9 une d\u00e9mence, jusqu'\u00e0 son d\u00e9c\u00e8s fin 2020. \u00a0<\/p><p>S'occuper d'un proche atteint de d\u00e9mence n'est jamais facile, mais Gwenn est reconnaissante que ses fr\u00e8res et s\u0153urs et elle-m\u00eame aient pu travailler ensemble et se r\u00e9partir les t\u00e2ches, sans qu'il y ait de d\u00e9saccord sur les soins \u00e0 prodiguer \u00e0 leur m\u00e8re. \"Nous avons eu de la chance\", dit-elle. \"Le soutien a \u00e9t\u00e9 facile, mais le voyage ne l'a pas \u00e9t\u00e9.<\/p><p>Gwenn vit \u00e0 Calgary, en Alberta. Elle a commenc\u00e9 \u00e0 faire du b\u00e9n\u00e9volat aupr\u00e8s des Alberta Health Services (AHS) il y a pr\u00e8s de sept ans, puis s'est jointe \u00e0 un projet dirig\u00e9 par une autre membre du CRPCSP, <a href=\"https:\/\/pcpcrc.ca\/fr\/member-profile-jessica-simon\/\">la Dre Jessica Simon<\/a>. \"Il s'agissait d'\u00eatre la voix de la famille\", explique Gwenn. Le projet consistait \u00e0 mettre en \u0153uvre la planification pr\u00e9alable des soins dans les unit\u00e9s hospitali\u00e8res, et Gwenn assistait aux r\u00e9unions pour s'assurer que les processus \u00e9taient acceptables pour les patients et les familles.<\/p><p>La passion du Dre Simon pour la planification pr\u00e9alable des soins \u00e9tait contagieuse ; pour Gwenn, la planification de la fin de vie est devenue un centre d'int\u00e9r\u00eat et une passion. La m\u00e8re de Gwenn \u00e9tait tr\u00e8s bien pr\u00e9par\u00e9e : elle avait exprim\u00e9 ses souhaits et rempli les documents relatifs aux soins \u00e0 l'avance, et coordonn\u00e9 l'acc\u00e8s aux ressources avant qu'elles ne soient absolument n\u00e9cessaires. \"Elle \u00e9tait un excellent mod\u00e8le de pr\u00e9paration\", d\u00e9clare Gwenn.<\/p><p>C'est la Dre Simon qui l'a initi\u00e9e aux travaux du CRPCSP, en l'encourageant \u00e0 devenir partenaire et \u00e0 partager son exp\u00e9rience des soins prodigu\u00e9s \u00e0 sa m\u00e8re. Gwenn rejoint un groupe de patients et d'aidants partenaires d\u00e9vou\u00e9s qui apportent leurs exp\u00e9riences v\u00e9cues pour s'assurer que les \u00e9tudes des membres du CRPCSP sont centr\u00e9es sur les patients et les aidants. Nos partenaires assistent aux r\u00e9unions du CRPCSP, examinent les documents de communication destin\u00e9s au public et \u00e9valuent les demandes pr\u00e9sent\u00e9es dans le cadre du concours annuel de financement de d\u00e9marrage du CRPCSP.<\/p><p>Alors que Gwenn s'appr\u00eate \u00e0 assumer ses nouvelles fonctions au sein du CRPCSP, elle continuera \u00e9galement \u00e0 s'impliquer dans le AHS, bien que dans une autre fonction. Elle travaille d\u00e9sormais \u00e0 la boutique : \"C'est plus amusant que je ne le pensais !<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-e98360d elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"e98360d\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-9238f2a\" data-id=\"9238f2a\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-458bc4b elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"458bc4b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-381318d elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"381318d\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;jet_parallax_layout_list&quot;:[]}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-06c6345\" data-id=\"06c6345\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-15ca0c7 elementor-widget elementor-widget-text-editor\" data-id=\"15ca0c7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Vous souhaitez devenir patient ou proche aidant partenaire? <a href=\"https:\/\/pcpcrc-media.s3.ca-central-1.amazonaws.com\/wp-content\/uploads\/2026\/04\/22151504\/CRPCSP-patientproche-aidant-partenaire.pdf\">Renseignez-vous sur la proc\u00e9dure \u00e0 suivre.<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>The Pan-Canadian Palliative Care Research Collaborative (PCPCRC) is recruiting additional patient or caregiver partners to help shape the future of palliative care. The primary role of a patient\/caregiver partner is to ensure the PCPCRC and its members&#8217; studies are patient-centered. The patient\/caregiver partner brings their personal experiences to help us focus on meaningful patient outcomes, [&hellip;]<\/p>\n","protected":false},"author":1016,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-3201","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Caregiver Partner Gwenn Boryski on the value of preparedness and planning - PCPCRC<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/pcpcrc.ca\/fr\/member-profile-gwenn-boryski\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Caregiver Partner Gwenn Boryski on the value of preparedness and planning - PCPCRC\" \/>\n<meta property=\"og:description\" content=\"The Pan-Canadian Palliative Care Research Collaborative (PCPCRC) is recruiting additional patient or caregiver partners to help shape the future of palliative care. The primary role of a patient\/caregiver partner is to ensure the PCPCRC and its members&#8217; studies are patient-centered. 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