{"id":2910,"date":"2023-06-12T09:17:56","date_gmt":"2023-06-12T13:17:56","guid":{"rendered":"https:\/\/pcpcrc.ca\/?p=2910"},"modified":"2023-07-19T09:48:32","modified_gmt":"2023-07-19T13:48:32","slug":"member-profile-debi-lascelle","status":"publish","type":"post","link":"https:\/\/pcpcrc.ca\/fr\/member-profile-debi-lascelle\/","title":{"rendered":"\"Contribuer \u00e0 la recherche\": Patiente partenaire Debi Lascelle"},"content":{"rendered":"
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Le collectif de recherche pancanadien en soins palliatifs (CRPCSP) est \u00e0 la recherche de nouveaux patients et proches aidants partenaires pour aider \u00e0 b\u00e2tir les services de soins palliatifs de demain.<\/span><\/em><\/p>

Le r\u00f4le principal des patients et proches aidants partenaires est de veiller \u00e0 ce que le CRPCSP et les recherches qu\u2019il soutient soient centr\u00e9s sur cette population. Ils mettent leur exp\u00e9rience personnelle \u00e0 profit pour aider les chercheurs \u00e0 \u00e9tablir des priorit\u00e9s et \u00e0 \u00e9tudier des r\u00e9sultats pertinents, \u00e0 comprendre le point de vue des patients et des proches aidants et \u00e0 trouver des moyens efficaces de leur communiquer de l\u2019information sur leurs \u00e9tudes.<\/span><\/em><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Debi Lascelle habite \u00e0 Ottawa, en Ontario. Elle s\u2019est jointe au CRPCSP en janvier 2018, mais sa participation \u00e0 la recherche a commenc\u00e9 bien avant ce partenariat. En 2010, alors qu\u2019elle \u00e9tait b\u00e9n\u00e9vole dans un centre de soins palliatifs local, elle a appris qu\u2019on cherchait des volontaires pour participer \u00e0 une \u00e9tude qui cherchait \u00e0 \u00e9valuer le potentiel de la TDM comme outil de d\u00e9tection pr\u00e9coce du cancer du poumon.<\/span><\/p>

Debi ne se sentait pas malade, mais elle r\u00e9pondait aux crit\u00e8res de s\u00e9lection. Elle a donc d\u00e9cid\u00e9 de participer \u00e0 l\u2019\u00e9tude, durant laquelle elle a subi un examen de tomodensitom\u00e9trie qui a r\u00e9v\u00e9l\u00e9 un cancer du poumon \u00e0 un stade pr\u00e9coce.<\/span><\/p>

Recevoir un diagnostic de cancer n\u2019est jamais facile. Toutefois, pour Debi, ce fut rassurant de savoir que le diagnostic avait \u00e9t\u00e9 pos\u00e9 rapidement. Les m\u00e9thodes traditionnelles de d\u00e9tection du cancer du poumon ne permettent pas de le diagnostiquer aussi t\u00f4t, ce qui rend le traitement plus difficile. Heureusement, gr\u00e2ce \u00e0 la d\u00e9couverte pr\u00e9coce de sa tumeur, Debi a pu b\u00e9n\u00e9ficier d\u2019un plan de traitement et d\u2019une convalescence moins \u00e9prouvants. Une op\u00e9ration relativement simple lui a \u00e9pargn\u00e9 la chimioth\u00e9rapie et la radioth\u00e9rapie.<\/span><\/p>

Cette exp\u00e9rience positive a donn\u00e9 envie \u00e0 Debi de manifester sa gratitude envers le milieu de la recherche en s\u2019y impliquant; c\u2019est pour cette raison qu\u2019elle a finalement choisi de devenir patiente partenaire au CRPCSP. Elle fait d\u00e9sormais entendre son point de vue aupr\u00e8s des chercheurs en soins palliatifs, et encourage les personnes qui voudraient suivre son parcours \u00e0 se lancer.<\/span> En tant que patiente partenaire, elle aide les chercheurs en soins palliatifs \u00e0 prioriser les patients dans l\u2019\u00e9laboration et la conduite d\u2019\u00e9tudes. M\u00eame si travailler avec des m\u00e9decins est parfois intimidant, Debi croit fermement en l\u2019importance de sa contribution.<\/span><\/p>

\u00abQuand on participe \u00e0 une \u00e9tude, on contribue \u00e0 la recherche; on fait don de soi et on y gagne, explique Debi. Les chercheurs ont tendance \u00e0 travailler en vase clos sans conna\u00eetre les patients et sans savoir si leurs recherches seront utiles pour nous. Nous pouvons intervenir afin que la recherche soit centr\u00e9e sur ces derniers.\u00bb<\/span><\/p>

Le Dr James Downar, fondateur et copr\u00e9sident du CRPCSP, et son \u00e9quipe ont fait de la place pour les patients partenaires et consid\u00e8rent leur point de vue avec s\u00e9rieux, ce qui a aussi encourag\u00e9 Debi. D\u00e8s le premier jour, elle s\u2019est sentie accueillie et \u00e9cout\u00e9e par l\u2019\u00e9quipe, qui se montrait attentive \u00e0 ses commentaires et \u00e0 ses id\u00e9es.<\/span><\/p>

\u00abVraiment, ce sont d\u2019excellentes personnes, de conclure Debi. C\u2019est pour cette raison que je reste.\u00bb<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Vous souhaitez devenir patient ou proche aidant partenaire? Renseignez-vous sur la proc\u00e9dure \u00e0 suivre.<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

The Pan-Canadian Palliative Care Research Collaborative (PCPCRC) is recruiting additional patient or caregiver partners to help shape the future of palliative care. The primary role of a patient\/caregiver partner is to ensure the PCPCRC and its members’ studies are patient-centered. The patient\/caregiver partner brings their personal experiences to help us focus on meaningful patient outcomes, […]<\/p>\n","protected":false},"author":1016,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-2910","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"\n"Giving back to the research community": Patient Partner Debi Lascelle - PCPCRC<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/pcpcrc.ca\/fr\/member-profile-debi-lascelle\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\""Giving back to the research community": Patient Partner Debi Lascelle - PCPCRC\" \/>\n<meta property=\"og:description\" content=\"The Pan-Canadian Palliative Care Research Collaborative (PCPCRC) is recruiting additional patient or caregiver partners to help shape the future of palliative care. 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